- British brothers Jordan (31) and Cian (25) Adams carry a MAPT gene mutation that is almost certain to cause frontotemporal dementia — they lost their mother to the disease and are racing the clock while staying positive and active.
- They ran 33 marathons in 33 days (including a 32‑county Irish Challenge and a London Marathon with a fridge strapped to Jordan’s back) to raise awareness and have helped raise nearly £2 million for FTD support and research.
- Their advocacy earned them a Wimbledon Royal Box invite (they kept programs and hats as mementos), praise from public figures and plans for the Chicago Marathon and a Kilimanjaro trek — they’re pushing for better services as well as a cure.
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